tangents & minutiae

musings of one who is easily distracted

Month: November, 2012

Madness and Metastases

 

Melancholia  has been the dominant medical issue in my life before cancer. I have been on anti-depressant and anti-anxiety medication for a large part of my adult life, and probably should have started much younger, and saved myself a lot of trouble. Seriously. Melancholia never felt like insanity to me, in fact, it felt like hyper-sanity.

But until the past three weeks, I have never been mad. I mean “mad-as-a-hatter” mad. Wildly impulsive mad.  Maniacal lack of emotional stability mad.  “I don’t care that you want a good grade since everyone is getting an A” MAD. MAD.

I believe the madness began when the emergency room doctor told me that the tests showed that the cancer had spread to my brain, causing the seizure I didn’t remember. “Oh.”  That’s it. That was my response. In his story The Sandman, E.T.A. Hoffman a young man with myriad emotional issues finds himself falling in love with a automaton named Olympia. She is lovely with mechanical contrivances that mimic the subtly of breath through perfect little pearl teeth. She cocks her head when you speak to indicate she is listening and when asked for a response, softly cries Oh.  As for me, I was Olympia at the end of the story, the uncanny artifice of my existence laid bare and not understanding what went wrong.

While the clockworks began to resume their function in the hospital, the physicians decided to manipulate the careful balance of humors that my psychiatrists and I have developed to keep things moving smoothly. This was based on the SIEZURE. The seizure was what brought me to the hospital. The seizure is what made them put me in the neurology ward. And the seizure is what justified a cavalier change in my medication that brought on the MADNESS. See, since the seizure was all, anything in my medication that could be even remotely connected to a seizure risk was taken away. This included my beloved Wellbutrin, an anti-depressant I have been on for over ten years.

So, there I was, bathed in a shimmering narcotic haze of the new medication, as one of the stabilizing forces of my brain chemistry drained out of my system. There were some benefits at first. The full gravity of my diagnosis sank in slowly and the perceptual fuzziness allowed me to slowly evaluate my faculties, memory and such. I started to feel almost playful and I talked about dreamy things and loved everyone. When I re-assured everyone at work that I wasn’t going to die and that I wanted to continue teaching, I was able to don my reliable public façade.

But. Then floods and flurries of ideas about things that I had to have or do right now began. I had emotional outbursts, sobbing jags, and tiny tantrums that I knew were making everything so much harder on those around me. At the same time I was whimsical and affectionate or melancholy and sentimental, needy and defiant. All seemingly in a matter of moments.

All the while, sitting quietly, in a leather club chair, behind all the haze, was a figure. Resonating beneath the sharp tinkling cacophony of impulses, her voice reminded me over and over that this could not be allowed to get out of control. That my behavior was torturing Todd, who is trying to contain his own trauma of a dying wife. 

Then I went to Target for something last night. I called ahead, but when I got there, no one knew anything something behing held for me and I wait as they search. As I wander around  I notice that I’m maintaining a running internal monologue: this is why I called. Because no one can trust the store with all the drones with no power or authority and loud walkie-talkies knowing nothing. This is why I called. If only people would just talk to people and give a rat’s ass. I have cancer lesions in my brain and I came out here only because she promised it was here. They made a cancer patient come out here for nothing.  I hate this place. Fine you win, I lose. I always lose.  OH MY GOD I’M MAD. 

On the way home, the realization that I am mad, gave me pause. This morning it hit me that it was going cold turkey on Wellbutrin. My radiation oncologist also said that the steroids often bring on crazy. He put me back on Wellbutrin and the steroid is on its way out. Hopefully balance will soon be restored, though a little of my madness, just a smidgen  can stay if it likes.

 

While all this is going on, my oncologists are actually working on treating the lesions that started this mess in the first place and I am almost finished with a course of fourteen whole brain radiation treatments. I had my scheduled PET scan while I was in the hospital and nothing has changed in four months My medical oncologist in St. Louis is in the loop and all the adults are working diligently to keep my little cranial mechanisms in working order.

 

 

 

Advertisements

NaBloPoMo 25: Automata

cognito ergo sum

really?

NaBloPoMo 24: Los Angeles

Los Angeles, by The Rosewood Thieves From The Decker House 2006

More nostalgia I suppose, but when this song came up on Pandora today I had to buy the album. I grew up on Rosewood Avenue near Vermont and Western in Koreatown off of the 101 freeway. Our exit was next to the Braille Institute and growing up I remember it was hot and everything seemed to have an amber haze (before the major reforms that cleaned up the smog.)

My lovely friend is loaning me her Diana camera tomorrow and I’m excited to play with the visuals and light effects that seem like what I see in my Los Angeles memories.

NaBloPoMo 22/23: Favorite Things, Thinking of Home

Thanksgiving is one of my favorite holidays. It wasn’t always. When I was a child, Thanksgiving weekend was reserved as a hunting expedition for my father and brother. They would pack the van and trapse off into the California wilderness in search of quail and pheasant, coming back smelly, unshaven and thoroughly happy with hopefully very few dead birds.

This left my mother and I to our own devices for the holiday and we usually found ourselves at a local coffee shop eating a generic turkey dinner as paper signs advertising milkshakes spun from the ceiling vents. Not a lot of fun, but different from the every day. Typical Los Angeles sunny “autumn” day where the only indication of the holiday was orange paper pumpkins stuck to the windows. We didn’t start having “proper” Thanksgivings until my dad got older and didn’t feel as inclined to camp out in the back of a van for fun. and then my sister and I started taking on the holidays ourselves. I always got Thanksgiving and made the first foray into the dinner that would appear twice before the end of the year, since turkey was for both. We did the big traditional meal and then hang out and play nickel-ante poker, bullshit, and eat pie with my friends who came over later. Everybody adored my dad, and the hours of labor in the kitchen were always entirely worth it because it made him, and all of us, feel happy and loved. Damn, I miss that man.

This all happened under the skies of sourthern California, and while I wasn’t much of an astronomer as a child, I could always fron the constallation Orion in the sky at home. The three stars of Orion‘s belt were what I would pick out immediately when I found it, and I even felt a silly connection to Orion Pictures in the late 70s and 80s. The studio also released the first love story to pierce my heart, A Little Romance, in 1979, when I was in the throes of my own first love.

1. Melancholy memories of sweet childhood kisses from my first boyfriend in 1979

2. The rasp of my daddy’s beard against my cheek when I kissed him hello after a hunting trip, and the feel of his scratchy Pendleton shirt.

3. Warm, salty buttermilk biscuits from a vacuum tube

4. Our working hands around the card table

5. The a table filled with Jewish-Okies laughing under the belt of Orion.